SOCIAL JUSTICE | COMBATTING PREJUDICEThe discussion on activism and humam rights continues:
Elizabeth (and the others who are reading the dialogue):
Your response is, equally, heard, but it seems the points I try to make are missed. This time, then, I'll try to be more succinct.
I get a sense that part of this discussion [from comments made both by E A Ricter and David B] that one of the ways to trash psyche survivor movement elder statesmen for the failure of society to listen to what we have been saying for decades | This may be an inaccurate supposition, perhaps, but it one that comes across when reading their comments nevertheless |
You are quite accurate in identifying that the breadth and spread of influence of the medical model has expanded in those 30 or so year, rather than contracted |
Yes, there are probably more kids on "Big Pharma cocktails" and the citizenry in general is more apt to run for the quick fix "cures" offered amd promoted by drug companies, social policy planners and the psychiatric industry | But none of these phenomena are the fault of long battling activists who are also psyche survivors [and their supporters] Indeed, some history lessons are in order here |
Take time to read things like Leonard Roy Frank's books on the history of electroshock, Peter Breggin's books or Ken Kesey's "Cookoo's Nest" | Sit through films like the "Snake Pit" or "Titticut Follies" or meander through the small but growing number of websites that chronicle what life was like in abandoned asylums | If you can find copies, read the mimeographed and photocopied protest newsletters that abounded in the late 1970s and into the 1980s [Alice Earl's Peer Advocate for one] which documented CIA funded projects like MK Ultra and the McGill University sensory deprivation experiments of Ewan Cameron long before the mainstream publishing houses wanted to touch the stories | And take the time to look for more obscure tones like Edward Pinnell's The Witnesses [England 1940s] or Barbara O'Brien's "Operators and Things" | The latter two books witnessing abuse or ethical breaches written by people who were not connected with movements yet who spoke in hauntingly true tones of situations before drugs, and equally barbaric and morally corrupt |
What I'm getting at here is that the social injustices that Elizabeth's "70%" have been exposed to has been going on for ~ not just decades, but centuries | I can assure you, once you read our history, you will walk away with the knowledge that there has NEVER been much of any
>"... real attempt to identify the social and familial issues
> underlying an emotional crisis, merely a superficial
> focus on behavior..."
Perhaps the only difference between then and now is that adverse effects of
massive dosings of modern day psyche drugs are less visible than, say, insulin shock wards, camisoles, ice baths and body bags | Not much of a difference, really, I'm afraid to say |
And I would be careful about being
>"...far more concerned about these people whose lives are being destroyed
> and mangled than I am about the minority who actually might be said to
> have some differences that make it extremely difficult for them to
> fit in socially..."
The other 30 % ~ that minority ~ also have feelings, experience pain and suffering and are just as ~ hell, even MORE susceptible to mistreatment, abuse and, yes, at times, torture, than the remaining majority | Perhaps, perversely, exposing that other 70% to the horrors of the coercive and destructive power of the psychiatric / mind control industry, is actually a good thing; if nothing else, those who survive it have gone away and been damned angry about what happened to them, and speak out |
I'll caution the newbie psyche survivor activist, however, that for every one or two you meet who has been fighting this fight for decades, there are LEGION who start out as activists and once settled in and away from the immediacy of their ordeals, fade into the woodwork of the larger culture, and stop speaking out directly | I can't say I blame them | Life is much less complicated that way | Being an activist in this kind of movement takes a toll on you physically, spiritually and psychially | Friends and family who don't have like experiences seldom put up with our "obsessions" and are every bit as likely to dismiss or disparage our anger and ire as those who KNOW the message about psychiatric oppression is a true one, a valid one | And, I ask you, how many people honestly would remain dedicated to fighting a battle that is, at times, as elusive as the sources of unseen voices that some here but no one else recognizes |
It is disappointing ~ disappointing and hurtful ~ to read someone who actually writes a statement that they are less concerned
>"...about the minority who actually might be said to have some
> differences that make it extremely difficult for them to fit in socially."
My point was not about having difficulty "fitting in" | My point was that we measure the quality of the entire society by how the society treats its most ignored, it's most reviled, it's most pitied |
A little personal point here | I work as a human rights activist in a locale where ~ daily ~ I enter into a maximum security psychiatric facility | There are many folks there who, given the present political and social climate in the USA ~ even in a "blue state" are unlikely to ever be released from the place unless being transferred to one of a similar nature | Some are there simply for the "crime" of attempting suicide or who had too many brushes with the law concerning street drug activities | Some suffer from the social maladies of illiteracy or
life long institutionalization [and yet, still under the age of 35] The facility
where I spend a greater part of my time arguing for basic rights to be recognized
is but one of many | They are only the more restrictive end of the spectrum of
"services" provided to society by the mental illness industry | Do-gooders and
angry activists outside of these kinds of places, rarely, if ever, step into
them, much less ask about the goings on of such places |
In context, when listening to others, relatively new in the movement for fighting for human rights in the psychiatric / mind control microcosm, I want to be clear that my earlier rant today was not just a "...concern about fragmentation of the movement..." | It's much broader than that, much broader | See, I've watched the folks come and go, earnest and angry, critical and disparaging and uncomfortable being seen with the "low functioning droolers" who hang outside psycho-social club houses or in hospital day rooms | And later on, they go away, perhaps having secured some position in a cushy non-profit who hires them on as their token crazy person staffer ~ serving as a gadfly and keeping the rest of the staff at
least minimally honest ...but they never got it | They never, ever saw that ~
once they were away from their "unnecessary suffering" ~ that their walking away
didn't eliminate the suffering machine | And without simultaneously creating real
alternatives for the folks who truly do suffer [yet who DO NOT LACK UNDERSTANDING
OF THIS FACT] while railing against the larger social injustices that allow that
suffering machine to remain in toto, then it will always be there, dark,
brooding, lurking in the background, ever ready to take you again, only the next
time, maybe to never spit you out like it did the last time |
Dismissing the suffering of those who were suffering before they ever went into such a system, is as bad as thinking the plantation system was alright, because the fair skinned negroes got to read and write and stay in the big house | As long as the system exists, we are all low functioning individuals |
Welcome to the real world of social justice activism in the 21st Century | Get used to it | We have a LOT of work to do, and it's possible we might not see it all done within our own lifetimes | I hope that we will, but we have to be prepared to pass the torch along to other valiant souls 30 years from now |
SOCIAL MENTAL ILLNESS
Although the State of Connecticut, under chief thief John Rowland, was capable of shoving through a
$229 million dollar gift to ENRON weeks before it went bankrupt, it appears that same state is unable or unwilling to pay state pharmacies on time to ensure that clients on Title 19 get their medications as prescribed |
I try not to burden my state legislators with case-by-case problems of clients but one that came to light this morning is particularly disturbing. Moreover, it sounds as if it might have much larger ramifications |
This morning -at home- I got a phone call from a man on the other side of the state, distraught after being told by his Assertive Community Treatment [ACT]
* team nurse that he didn't have any medications for the weekend | After a couple of phone calls I learned that the pharmacy owner was refusing to provide any meds to clients whose pharmachy bills the state has gotten behind in paying the pharmacy bills | In this man's situation the bill amounts to some $2,000 (approximately). I've no idea how many other clients are so adversely impacted |
While on the pharmacist's part, I can understand his frustration at not being paid, it seems inconscionable to deprive people of prescribed medications, I also know this problem [i.e.pharmacies not getting paid] is not a new one. I'm not certain which is the culprit, but just because Connecticut's Department of Administrative Services [or the Office of Policy + Management] can't get it's act together to pay vendors in a timely manner doesn't mean the state's most fragile should be punished |
In this specific situation, I'm trying to work out with the pharmacist, by phone, so the man to get his weekend's work of medications and hope that this could get resolved on Monday | And just for the record I also took the time to raise the question to one of the legislators on the Public Health Committee |
* ABOUT ACT TEAMS: "Assertive Community Treatment is a team treatment approach designed to provide comprehensive, community-based psychiatric treatment, rehabilitation, and support to persons with serious and persistent mental illness such as schizophrenia | Services are provided within community settings, such as a person's own home | FOR MORE ABOUT THE "ACT" Model see the Assertive Community Treamment Association website
HOSPITAL LIFE
My first visit to see someone in the mental hospital, in 1982, was difficult | I'd gone to visit a friend who'd only recently been admitted | I didn't have any idea what to expect |
To make matters worse, I'd worked third shift, had been up most of the day running errands and chores, and was tired | I still had to go home to at least take a nap before starting the work cycle all over again |
Visiting hours were very unstructured | All visits took place in a large common room where people were aimlessly shuffling about, others reading, someone else was on the pay phone | A group of four men sat at a table rolling cigarettes from loose tobacco with a large rolling device that sat on the table | A visitor could, if he wished, stay all day | Just make sure you don't lose that visitor's badge, a flimsy piece of stick-on paper upon which you'd written your name | When you tired of visiting, you'd just get up and ask one of the staff to let you back downstairs |
It was not a good visit | I'd brought him what he'd asked for but he was off, upset, angry and not focused | I stayed until my friend got up and walked off, and just didn't return to where we were sitting | So I got up and asked to leave |
Ward staff let me out the door by the elevators | While the door to the elevator was wide open, staff neglected to tell me I'd need to be "keyed" to get down and out the building | I waited about 10 minutes before anyone came by | Finally, a gruff, gnarled sour-faced man came down the hall, got into the elevator car, turned the key in the slot, and we headed down | The car started on it's very slow trajectory down four floors to the lobby |
I must have sighed audibly, or made some other sound, for the man turned to me and said "
Rough day, huh?" | I acknowledged that it was | Then, without so much as a scintilla of further discussion he said [or thought] aloud, "
Yeah, that's the problem with this place" |
Curious, I asked, "
What's that?" |
This time he sighed. "
They don't let us put them in restraints as much any more" |
"
Ahh!" I responded, almost grunting | There were three more flights to descend | I didn't know this man from Adam, but it was clear he wanted me to know with what degree of seriousness he took his job | I didn't know it at the time, because I was wondering what he'd do if I paniced while alone in the slow moving car with him, but that chance encounter started me on the career path I continue to follow today |
Fighting for patients' rights |
PHOTOS FROM a collection of over 800 taken while on a series of "urban expeditions" with my photographer friend Chad Kleitsch
DRUG WARS || MENTAL HEALTH
The cozy bed of politics and medicine | I hand over this entry to Stefan Kruszewski:
Medicine and politics are obligatory companions, as inseparable as tea and biscuits. Although academic reactionaries and purists may argue that medicine should not be tainted by political agendas, rarely has this been, or is it, reality. (1)
Medicine--as practiced in times and regions as diverse as pre- Christian Hippocrates, Freud’s Vienna or Massachusetts’s Back Bay--invokes relationships, all of them illustrating a political connectedness to governing authorities.
When I hear fellow Pennsylvania physicians speak of politics in medicine, the substance often reflects those controversies that attract media scrutiny and hefty emotional responses: Fee-for-service vs. managed care reimbursements, Darwinian evolution vs. creationism, stem cell research vs. right-to-life arguments, clean needles for IV drug users vs. moral objections, and/or financial support for AIDS prevention and treatment vs. financial resources allocated elsewhere. However riveting are those arguments, it is the day-to-day interrelationship of politics and medicine---those that border on the mundane—that cement the relationship. The existence of that bond makes the case, at least for me, that our relationships to, and with, governing bodies are fundamental to medicine and therefore critical to medical reporting. (2)
In psychiatric medicine, the evolution of this interrelationship, particularly as it pertains to 19th and 20th century U.S. federal and state policies, is highlighted by involuntary commitment, deinstitutionalization, Federal, State and private sector funding sources, psychiatric epidemiology and pharmacoepidemiology(3).
As is true of both psychiatric and non-psychiatric medicine, our profession in Pennsylvania is licensed by authorization of the Department of State. The Secretary of State is an official appointment of the elected Governor. The regulatory oversight and management of conduct for practitioners of the healing arts (including medicine, dentistry, veterinary, podiatry, nursing, etc) is defined by Pennsylvania Code (applicable laws of Pennsylvania) as well as federal and local/community standards. Similar laws and standards define the compensation for our services from federal programs (Medicare), federally-subsidized state programs (Medicaid) and from private insurers who are under State and Federal licensing and regulation.
Medical practitioners prescribe within the directives and guidelines of the Federal Drug Enforcement Agency (DEA) and, where applicable, individual state agencies that monitor controlled substances. (Not all US states have separate registries for controlled substances; Pennsylvania is one that does not.)
Like its counterparts in the UK(MHRA, NPSA; others), our pharmaceutical and therapeutic prescribing habits have Federal watchdogs, including the U.S. Food and Drug Administration, multiple collateral advisory committees and Federally-funded programs that assist the process of research and information dissemination (National Institute of Health/National Institute of Mental Health/Substance Abuse and Mental Health Services Administration: NIH/NIMH/SAMHSA; others.)
The American Psychiatric Association (APA) and its collaborative organizations devote a prodigious effort to legislative and political agenda. The current APA website’s Homepage highlights three “front and center” advocacy items: Endorsement of recent Congressional passage of an $83 million dollar ‘Suicide Prevention Bill’, and two subsequent links to the APA Advocacy Action Center and APAPAC, both sites that promote lobbying efforts on behalf of APA’s constituency. (4)
Oversight regulation, advocacy and legislative agendas, investigatory and legal mandates underscore medicine’s inseparable coexistence with politics. With issues of medical record confidentiality, academic research freedoms, parity, tort reform, the involuntary commitment of individuals, the duty to warn, the continued evolution of Lyndon Johnson’s Community Mental Health Act of 1965 or George W. Bush’s New Freedom Commission’s recommendation to screen American’s youth for psychiatric disease, psychiatry is as much about legal and political agendas as it is about mental illness and mental health.
Whether the issues pertain to psychiatry or non-psychiatric medicine, it is crucial for journals to discuss political trends and counter-trends in medicine---just as it is expected that they deliberate the epidemiology and pathophysiology of heart disease, cancer or schizophrenia. Medical journals and physicians would be well served, I believe, by confronting-- not denying--the issues and the political forces that shape them.
[published : 10 nov 2004 as "The Inseparability of Medicine and Politics";
British Medical Journal | My readers might also want to look at the article that calls for
greater scrutiny of the use of psychiatric medications to determine their adverse "side effects"]
REFERENCES: 1. Krakauer, E. Yale J Biol Med. 1992 May-June; 65(3):243-9. || 2. Abbasi, K. Should journals mix medicine and politics?BMJ 2004; 329: 0-g || 3. Center for Mental Health Services, Mental Health, United States 2000. Manderscheid, R.W. and Henderson, M.J., eds. DHHS Pub No. (SMA) 01-3537. Washington, DC: Supt. of Docs., US Govt. print. Off., 2001) || 4. American Psychiatric Association Homepage, (Accessed 11.05.04) || Competing interests: None declared